Nicole, on Mindfulness
It's not the end of the world. It feels like it is, but it's not.
Now that time is more of a currency and a high value thing, I look at that as how I'm spending it, and I want to spend it with my family and the people that matter versus doing things that I guess are more superficial.
So it was learning to adapt to kind of a new sort of normal. Like I will always have this disease or a thought of it in my mind, from 28-years-old for the rest of my life because it's something I will always have to be on alert for.
Instead of living life like I'm running out of time, I want to live it like I still have time. I don't want to live like I'm dying, because I'm not.
We can still be a couple in love, and it doesn't have to be surrounded by the sadness of the disease.
There's so much support and information for the patients. But finding that same support and information for family, friends, caregivers, I feel like is much less seen. Those stories I think are just as important. Because stories connect us and they make us feel stronger. They make us feel not alone.
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